I’ve found in my experience, there seems to be an abundance of information on how ugly lupus can be. After, living with the disease for five years, I can confirm firsthand that it can be extremely ugly, relentless, controlling, overpowering, and hateful. It can rob you of your dignity, your spirit, your mind, your body and your life.

But it doesn’t have to be that way…

I have learned so much over the course of my diagnosis and over the past five years of living with lupus; making some pretty poor choices and then some really great choices along the way.

Now I am living the best life I have ever lived, and I want to share everything that I have learned and I want to let you know that you too, can live a life filled with confidence, empowerment, energy, balance and joy, as I now do. In fact I feel like I live a better life then before my diagnosis.

I admit though, it wasn’t always that way from the beginning of my diagnosis. I definitely went through the “5 Stages of Grief” which is the theory that states when a person is faced with the reality of death or some other extreme, awful fate, they will experience a series of emotional stages: denial, anger, depression, bargaining and acceptance .

I dwelled in denial for a very long time. I didn’t want to accept that I had anything “wrong” with my body. And I certainly didn’t want to go on steroids which I had read so much about and all the negative side effects.. Who would voluntarily sign up for gaining a ton of weight almost overnight, and being more susceptible to colds and bone fractures??

But I learned the hard way that steroids (and other medications) were a necessity until the inflammation has reduced: after defying my doctor’s orders and weaning off my medication, I ended up with Stage IV kidney damage, along with a host of other unpleasant events.

As I began to learn more about lupus and what exactly it is and the triggers that caused and worsened the symptoms for me, I started to put a few principles in play in the hopes to achieve a greater sense of balance.
I started keeping daily journals of various kinds in order to get to know my body better and how I reacted to certain things at a physical, emotional and spiritual level. I learned that certain things caused more inflammation at certain times of the month or the year (based on severe heat or cold and seasonal allergies) and realized I could indulge in any foods and physical activities I desired by understanding when my body would best react to them. I found that I could live a mindful life, as opposed to a restrictive life. I also learned some new habits to reduce my risk of catching colds and flus and found some natural remedies that have allowed me to remain strong, healthy and energetic. While my friends and colleagues were catching the flu, even though they took a flu vaccine, I remained untouched by colds and flus (outside of my initial diagnosis and the times I was hospitalized).

As I learned how my immune system works and how certain triggers made it react in certain ways, I started to manage my lifestyle in different ways that allowed me to support my body and immune system, and in return, it has supported me incredibly well. Outside of my initial diagnosis and the times I was hospitalized in my   first 2 years of being diagnosed, I have not had a cold, flu or a flare in the past 3.5 years.What I learned over time was to focus on these four aspects:

  • Understanding what causes inflammation at a physical level and how to reduce it;
  • Understanding what causes inflammation at a emotional level and how to reduce it;
  • Understanding what causes inflammation at a spiritual level and how to reduce it;
  • Acceptance of my diagnosis at my very core.

Throughout this website, I have provided tips that I believe will help you towards understanding lupus, and   moving you towards a place of positivity and balance through a focus on physical, emotional and spiritual healing.

If you would like to know more about the tools that helped me feel inspired, details can be found in my book, Lupus My Constant Companion and Greatest Inspiration in which I have shared my entire 5 year journey from the challenges of being diagnosed, the initial turbulent months, and everything I learned by keeping various personal journals, every single blood test, nutritional assessment, and a whole host of other information, in order to understand how lupus is triggered and how to manage my life in ways that enabled me to feel more energetic, balanced and joyful than I ever experienced before my diagnosis.